Your guide to the rare disease ecosystem
Raremap has been created to help you find out more about the organisations in the UK rare disease ecosystem, what they do and how they interact with each other.
Organisations, groups and networks
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Functions
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How is the rare disease ecosystem connected?
See how organisations, groups and networks interact with each other
Latest organisations
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LifeArc
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Manchester Rare Conditions Centre (MRCC)
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Glasgow Office for Rare Conditions
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Birmingham University Centre for Rare Disease Studies
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Rare Revolution
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Rare Disease campaign
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Jeans for Genes
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Health Data Research UK (HDR UK)
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Congenital Conditions and Rare Diseases Registration and Information Service for Scotland (CARDRISS)
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Congenital Anomaly Register and Information Service (CARIS)