This category includes organisations that create and disseminate communications around rare disease, for example online or print publications, and those that manage campaigns to raise awareness of and funding to support rare disease research.
- Raising awareness of the impact of rare disease and giving a voice to people living with a rare disease.
- Providing information about rare conditions to people living with a rare disease and the general public
- Providing updates and news on rare disease research and developments in technologies.
- Fundraising to support people living with a rare disease, charities and patient groups
- PPIE and outreach
- Campaigns for policy change and health equality
