Enabling infrastructure

This category includes the organisations, programmes and networks that provide the supporting services or infrastructure that is needed for rare disease research to take place.

  • Curate health data to provide researchers with access to large scale data, advancing research in rare disease. 
  • Provide sustainable disease registry services.
  • Collect and maintain resources of biological data and samples, made available to researchers.

See how this category interacts in the ecosystem


Example organisations in this category

WordPress website theme by whoisAndyWhite