Advocacy and policy influencing
Example organisations in this professional role
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Claimable org
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Natalya Test Org
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Congenital Anomaly Register and Information Service (CARIS)
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Congenital Conditions and Rare Diseases Registration and Information Service for Scotland (CARDRISS)
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Health Data Research UK (HDR UK)
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National Disease Registration Service (NDRS)
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NIHR Bioresource
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Northern Ireland Rare Disease and Congenital Abnormality Registry (NIRADCAR)
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UK Biobank
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Jeans for Genes